Description
The opening of the photographs exhibition. Stories of EB patients and Debra, patient organization, will be presented on ten panels. The photographer herself is a member of a family with an EB patient. She participates in events for EB families organized by Debra CZ where she takes her pictures. After the Rare diseases day, this exhibition will be presented in other Czech cities to raise awareness of this topic.
16:00 Welcome drink
16:30 Exhibition opening
Images
