New postal stamp for RD 2021
26 February 2021
Boris Radosavljevikj - Goce 12, Bitola
Hosted by Association of citizens for rare diseases LIFE WITH CHALLENGES
For RDD we planned an event for the 3rd postal stamp for rare diseases.
The first was for children with rare diseases, the second for Alport syndrome and now we are promoting the 3rd one.
It will be an event with invited stakeholders and we will focus on what is done and what is next for improving the life of families with rare diseases.
Our focus is on newborn screening and equity.