Description
Rare diseases affect a small percentage of the population, yet they impact the lives of those who live with them and their families in profound ways. Among these conditions are Familial Chylomicronemia Syndrome (FCS) and Homozygous Familial Hypercholesterolemia (HoFH), two rare inherited disorders that have significant health implications. While distinct in their mechanisms and outcomes, these diseases share commonalities in the challenges patients face—ranging from the physical effects to the social and emotional impacts.
On Rare Disease Day, we aim to raise awareness, foster greater understanding, and provide a platform for patient stories. This webinar will explore both conditions through the unique perspectives of patients living with them, showcasing their shared and contrasting experiences, and offering Insights from the medical expert about the diseases’ clinical features, diagnosis, and management.
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