28 Feb 2021
Sun 28 February, 2021

2020 events in Ireland
Launch of a new and revised
24 Feb 2020 Dublin
All island North-South
28 Feb 2020 Belfast
Our Annual Ball is back
29 Feb 2020 - 01 Mar 2020 Dublin
Rare Disease Day event.
29 Feb 2020 Dublin
Aniridia Network trustee
29 Feb 2020 Dublin
There will be three public
11 Feb 2021 - 25 Feb 2021 Dublin
Raise A Toastie to Raise
28 Feb 2021 Ireland
We are really pleased to
28 Feb 2021

Afternoon Tea Virtual Event 28 February 2021 , Ireland
Hosted by RARE Ireland

We are really pleased to announce our virtual Rare Disease Day event. We are holding a virtual Afternoon Tea with guest speakers Aine Lawlor and Samantha Kenny as well as some interesting contributions from our members. Aine Lawlor is living with 22q11.2 and Samantha Kenny is mum to Ava who is living with Wolf Hirschhorn Syndrome.

Aine will speak about living with a rare disease, how it affects her and what she’s accomplished and Samantha will speak about the challenges and rewards of raising a child with a rare condition.

We would love if our RARE Ireland members can join us on the 28th February to mark Rare Disease Day 2021.

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