Description
Rare Diseases NSW is excited to share and invite you to two special events at Sydney Children’s Hospital, Randwick, celebrating International Rare Disease Day 2025.
EVENT DETAILS
– Friday, 28th February 2025: For clinicians, students, educators, scientists, and anyone passionate about advancing rare disease care and promoting inclusivity in healthcare and research. Hear from leading researchers, clinicians, those with lived experience, and service providers at the forefront of rare disease care.
– Saturday, 1st March 2025: A family-friendly event bringing together people living with a rare disease, health professionals, and the wider community to connect, share, and inspire. There will be fun activities for kids, and it’s free-of-charge.
SPECIAL GUEST: RICK GUIDOTTI
Award-winning photographer Rick Guidotti, founder of Positive Exposure, will share his inspiring work celebrating human diversity and changing attitudes towards individuals with genetic, physical, behavioural, or intellectual differences.
Don’t miss this opportunity to learn, connect, and celebrate the richness of human diversity.
These events are funded by Rare Diseases NSW, UNSW Sydney, 22q Foundation Australia & New Zealand, and Genetics Alliance Australia.
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