Project ;,Blaue Schleife
28 February 2019
Hessen - Seligenstadt
Hosted by FAROMDER
# arediseaseday2019 würden u Sie bitte auch am demTag Blaue Schleife als unterstützung tragen !!!
There are 7000 different diseases in the world and 95% of these diseases are not treated.
Rare patients in the world 350 million It is estimated that 5 million of this figure in Turkey.
# RareDiseases Community l is a problem. 80% of rare diseases are of genetic origin and their marriage causes an increased risk of genetic disease. consanguinity rate in Turkey is 21%. In Saudi Arabia and Pakistan, this rate was 38.9% and 61.2%, respectively.
The proportion of consanguineous marriages in European countries is low and the rate of consanguineous marriages in the United States is only 0.1%.
# We support the #birmilyonmavikurdele project, which draws attention to rare patients and their families. We are all coming together under the Rare Diseases @ NadirHasAg, which are all united or unorganized