Description
As Turkish Association of Public Health Specilists Rare Diseases Working Group, we organize a forum with the “Earthquake Special” agenda on February 28, Rare Diseases Day at 8 p.m. (İstanbul Time)
Our program:
•Moderator: Prof. Dr. Recep Akdur, Director of HASUDER Rare Diseases Working Group
•Speakers:
– Prof. Dr. Uğur Özbek, Member of HASUDER Rare Diseases Working Group; “Rare diseases: a public health issue”
– Deniz Atakay, Rare Diseases Network (Türkiye); “The experiences of individuals with rare diseases and their families in the field, the work of the Network”
– Lawyer Güneş Uyar, Rare Diseases Network (Türkiye); “Rights of people living with rare diseases and their families: what happened in the earthquake?”
– Res. MD. Ecenur Topal, Member of HASUDER Rare Diseases Working Group; “What should the public health specialist do about rare diseases in an earthquake?”
– Res. MD. Hüseyin Örün, Member of HASUDER Rare Diseases Working Group; “What should the health sector do about rare diseases in an earthquake?”
Our broadcast will be release live on HASUDER official YouTube channel. Audiences’ contributions, suggestions and questions will be taken from the “chat” section. Link of our channel: https://www.youtube.com/c/KanalHASUDER
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