Description
Ladies and gentlemen,
on behalf of the Organizers, I have the pleasure to invite you to participate in the First Global and Fifth International Symposium Rare Diseases Day 2025 „ More than you can imagine – more than you can dream of!” organized on the occasion of the Rare Disease Day by Regional Specialized Children’s Hospital in Olsztyn and the University of Warmia and Mazury in Olsztyn under auspices of EURORDIS (rarediseaseday.org).
The Symposium will be dedicated to the rare neurodevelopmental and neurometabolic disorders manifested by brain malformations, paroxysmal events and sleep disorders. Among the invited speakers there are representatives of centers associated with European Reference Networks – ERN EpiCare, ERN-RND and ERN-ITHACA, like also with International Consortium for Research on Alternating Hemiplegia of Childhood (IAHCRC). We will also host representatives of patients with alternating hemiplegia of childhood and Friedreich ataxia with their families.
All interested persons are cordially invited to participate in the First Global and Fifth International Symposium Rare Diseases Day 2025 „ More than you can imagine – more than you can dream of!”.
Małgorzata Pawłowicz MD, PhD
Coordinator of Department of Pediatric Neurogenetics and Rare Diseases
Regional Specialized Children’s Hospital in Olsztyn