Description
For Rare Disease Day ALAN and the artist Yannick Tossing have collaborated on a new project called “Daily Distortion”. The launch of the project will be celebrated with a reception and an exhibition of M Tossing’s sculptures, which symbolize the impact a rare disease has on a person’s daily life and the distortion of what is considered to be “normal”. This reception will take place on the 28th of February, 2025 in the presence of the Minister of Health and Social Security, Martine Deprez.
For the “Daily Distortion” project, ethical and eco-responsible t-shirts, created by Yannick Tossing and produced by the Fondation Kräizbierg, will be sold to raise awareness for rare diseases, with a focus on Huntington’s disease, which is the artist’s source of inspiration. The visuals on the t-shirts are illustrations inspired by sculptures of M Tossing, who has experienced the impact of this neurodegenerative disease in his own family. The illustrations represent the challenge of using everyday objects when parts of these objects are deformed. In addition, the aspect of deformation draws parallels with genetic mutations, which are at the origin of many rare diseases.
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