Event

27 Feb 2019
When:
Wed 27 February, 2019
Location
São Carlos
2019 events in Brazil
Dia da Conscientização,
23 Feb 2019
Das 14h às 17h - Praça
24 Feb 2019
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Campanha #RarosEntreNós
24 Feb 2019 - 28 Feb 2019 São Paulo, Brasília
#SomosTodosRarosAmigos
24 Feb 2019 SÃO PAULO - SP
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O “Dia Mundial das Doenças
25 Feb 2019 Ribeirão Preto
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The Interdisciplinary Academic
27 Feb 2019 São Carlos
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Será realizada Sessão Solene
27 Feb 2019 Brasília
Das 13h às 18h - Palestras
28 Feb 2019
Este é um trabalho fotográfico
28 Feb 2019 - 15 Mar 2019 Curitiba
O tema Mundial deste ano
16 Mar 2019 Uberlândia, MG,...
Brazil

Conversation about rare diseases promoted by the Interdisciplinary Academic League of Medical Genetics of UFSCar in mention of the 2019 Rare Disease Day 27 February 2019 São Carlos
Hosted by Interdisciplinary Academic League of Medical Genetics of UFSCar

The Interdisciplinary Academic League of Medical Genetics of UFSCar will promote a discussion open to the University’s community and the society of São Carlos with the goal to sensitize and to make the audience aware about rare genetic diseases and the necessity of the inclusion of people with those diseases in society. To reach it, we will have guests like, Mrs. Jô Nunes, foundress and member of the Brazilian Association of Williams Syndrome (ABSW, in portuguese), Mrs. Priscila Cappellari, president of the Brazilian Association of Relatives and Friends of Bearers of Rubinstein-Taybi Syndrome (ARTS, in portuguese) and Mr. Luciano Menezes, member of the aMMigos Group (Group of Bearers of Mitochondrial Myopathy), besides the Association for Training, Guiding and Development of the Exceptional (ACORDE, in portuguese) of São Carlos.

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