NATIONAL ALLIANCES

National Association of  Patients with Rare Diseases '"GENETICA" logo
National Association of Patients with Rare Diseases '"GENETICA"
Russian Association of Rare Diseases logo
Russian Association of Rare Diseases

Russian Federation


Rare Disease Day in Russian Federation


The Russian Federation has participated in Rare Disease Day since 2009, involving the general public and stakeholders alike. Events have varied from photo and children’s art exhibitions, to roundtables and advocacy events. Charity auctions as well as press conferences to improve legislation and the health care system have also taken place.

For Rare Disease Day 2020 the Russian Federation held a number of events across different countries, Russia, Moldova, Kazakhstan, Armenia and Belarus. The day was celebrated with screenings of documentaries and films dedicated to different rare diseases aimed at promoting awareness.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].



NATIONAL ALLIANCES

National Association of  Patients with Rare Diseases '"GENETICA" logo
National Association of Patients with Rare Diseases '"GENETICA"
Russian Association of Rare Diseases logo
Russian Association of Rare Diseases

FRIENDS IN Russian Federation

Events in Russian Federation


III Всероссийский форум по орфанным заболеваниям image
III Всероссийский форум по орфанным заболеваниям

Форум проводится по инициативе Всероссийского союза пациентов и Всероссийского общества орфанных заболеваний. При поддержке...

26 Feb 2021 - 27 Feb 2021 - Москва

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We share about this day in social networks! image
We share about this day in social networks!

Родительский проект по оказанию помощи пациентам с миодистрофией Дюшенна/Беккера мы поддерживаем #RareDiseaseDay наше мероприятие «мы...

01 Feb 2021 - 28 Feb 2021 - Москва, санкт-петербург, воронеж

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