NATIONAL ALLIANCE

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ROMANIAN NATIONAL ALLIANCE FOR RARE DISEASES

Romania


Rare Disease Day in Romania


The Rare Disease Day campaign began in Romania in 2008. Each year, patient organisations organise marches, conferences and the distribution of flyers to promote and raise awareness about rare diseases all across the country.

In 2020 there were a wide range of awareness raising events held in Romania to celebrate Rare Disease Day. Including two national conferences in Sibiu and Bucharest on the topic ‘Reframe Rare Disease Day’, a Round Table event on the role of digital health, coordination of care and the integration of rare diseases into the healthcare system and training courses held for doctors and nurses. In addition to these educational events there was an art exhibition ‘captive in my body’ and a book launch describing the challenges of finding a diagnosis for those living with rare diseases.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].



NATIONAL ALLIANCE

ROMANIAN NATIONAL ALLIANCE FOR RARE DISEASES logo
ROMANIAN NATIONAL ALLIANCE FOR RARE DISEASES

FRIENDS IN Romania

Events in Romania


National Conference "Rare diseases in a digital world" image
National Conference "Rare diseases in a digital world"

National Conference Rare Diseases and digital health, 28.02.2021, 10.00 - 17.00----Conferința Națională Bolile Rare și Sănătatea...

28 Feb 2021 - Online

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Press conference: Equitable access to care for patients with rare diseases through the National Plan for Rare Diseases image
Press conference: Equitable access to care for patients with rare diseases through the National Plan for Rare Diseases

Press conference: Equitable access to care for patients with rare diseases through the National Plan for Rare DiseasesConferința...

26 Feb 2021 - Online

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Illuminating Medical University in Timisoara, Romania image
Illuminating Medical University in Timisoara, Romania

On 26.02.2021, the Medical University of Timisoara will be illuminated in the colours of RDD as a solidarity event of patients...

26 Feb 2021 - 27 Feb 2021 - Timisoara

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Together for patients with rare diseases image
Together for patients with rare diseases

Rare diseases are characterized by a large number of broad and diverse disorders and symptoms, majority having identified...

24 Feb 2021 - Bucharest

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Gaucher disease - awareness campaign in Romania image
Gaucher disease - awareness campaign in Romania

Gaucher disease is a little known rare genetic disease. When the diagnosis is early and the treatment begins in time, the...

22 Feb 2021 - 28 Feb 2021

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Launch of Rare Disease Day campaign image
Launch of Rare Disease Day campaign

Launch of Rare Disease Day campaign with a press conference and an art exhibition

15 Feb 2021 - Online

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