NATIONAL ALLIANCE

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RD Portugal

Portugal


Rare Disease Day in Portugal


Portuguese patient organisations have celebrated Rare Disease Day since 2008, organising a range of events over the years. Photo exhibitions, informative conferences, and rare disease award ceremonies have all helped to raise awareness. Previous campaigns have encouraged people living with a rare disease to submit photos and stories to share on social media and provided the opportunity for people living with a rare disease to visit laboratories to bring them closer to the research process.

Rare Disease Day 2020 saw the second edition of the event ‘Machodo-Joseph Disease: From the lab to society’, a rare disease documentary viewing followed by a debate attended by patient representatives and medical professionals and a science concert event in Coimbra.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

 



NATIONAL ALLIANCE

RD Portugal logo
RD Portugal

FRIENDS IN Portugal

Events in Portugal


Energias Raras: Ver Mais Além / Rare Energies: See Beyond image
Energias Raras: Ver Mais Além / Rare Energies: See Beyond

[EN]LBioMiT & CNC (Center for Neuroscience & Cell Biology) Communication Office celebrate RDD2021! With interventions...

28 Feb 2021 - Online

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Primeiro evento virtual de comemoração do dia das doenças raras_Somos muitos; Somos Raros; Somos fortes e estamos orgulhosos image
Primeiro evento virtual de comemoração do dia das doenças raras_Somos muitos; Somos Raros; Somos fortes e estamos orgulhosos

O Instituto Nacional de Saúde Doutor Ricardo Jorge, em colaboração com a DGS, a Comissão Interministerial de Coordenação...

28 Feb 2021 - On-line

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Apresentação do livro infantil ilustrado “As Aventuras do Tito - O Tito nasceu corajoso” image
Apresentação do livro infantil ilustrado “As Aventuras do Tito - O Tito nasceu corajoso”

O Tito tem a doença rara Neurofibromatose Tipo 1 (NF1), e é a personagem principal deste livro infantil. Nesta história,...

28 Feb 2021 - Lisboa

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Nós e os Outros: O Caminho a Fazer image
Nós e os Outros: O Caminho a Fazer

"Que história é que eu quero contar?" foi a pergunta que a Lia Silva colocou a si mesma acerca de como gostaria de viver...

28 Feb 2021 - Online

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Walk for Rare | Virtual image
Walk for Rare | Virtual

WALK FOR RARE is a virtual walk to raise awareness about rare diseases in Portugal. Join us and show how rare you are!WALK...

25 Feb 2021 - 28 Feb 2021

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Sorteio Energias Raras/Rare Energies Raffle image
Sorteio Energias Raras/Rare Energies Raffle

[EN]For RDD 2021, Mitochondrial Biomedicine and Theranostics Lab has created the Rare Energies Raffle!Acquiring a raffle...

15 Jan 2021 - 28 Feb 2021 - Online

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