NATIONAL ALLIANCE

Polish National Forum on the Treatment of Orphan Diseases - ORPHAN logo
Polish National Forum on the Treatment of Orphan Diseases - ORPHAN

Poland


Rare Disease Day in Poland


Poland's Rare Disease Day celebrations began in 2009, and since then, there have been many conferences and photo exhibitions. The First Lady of Poland offered her patronage to the day in 2013 and personally participated in key events. Every year there is a conference in Warsaw Royal Garden at which NGOs, doctors, politicians, media and patients are present.

Celebrations in 2020 included a number of events and activities for all members of the rare disease community including a Jazz4Rare concert and a ‘Rare means strong’ training and scientific mini-symposium.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].



NATIONAL ALLIANCE

Polish National Forum on the Treatment of Orphan Diseases - ORPHAN logo
Polish National Forum on the Treatment of Orphan Diseases - ORPHAN

FRIENDS IN Poland

Events in Poland


Rare Disease Day illuminations in Poland image
Rare Disease Day illuminations in Poland

Illuminations for Rare Disease Day 2021 in Poland:- Neptun's Fountain, Gdansk | LINK- Stadion Gdańsk, Gdańsk | LINK- Dyrekcja...

28 Feb 2021 - Gdańsk | gdynia | katowice | pruszcz gdański | szczecin | wrocław

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Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim image
Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim

Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim

28 Feb 2021 - Pruszcz gdański

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Jazz4Rare 2021 online image
Jazz4Rare 2021 online

Why jazz? In our opinion, jazz has a positive effect on the body and soul, including those affected by rare diseases. The...

27 Feb 2021 - Gdynia

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International Symposium Rare Disease Day 2021 - Warmia and Mazury, Olsztyn. „Long diagnosis, misdiagnosis, or no diagnosis ... – Rare diseases under the radar” image
International Symposium Rare Disease Day 2021 - Warmia and Mazury, Olsztyn. „Long diagnosis, misdiagnosis, or no diagnosis ... – Rare diseases under the radar”

Ladies and gentlemen,on behalf of the Organizers, I have the pleasure to invite you to participate in the International Symposium...

27 Feb 2021 - Olsztyn, online

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Spotkanie z niespotykanymi - II poznański dzień chorób rzadkich image
Spotkanie z niespotykanymi - II poznański dzień chorób rzadkich

ENG: Our event's mission is to gather Polish medical students and people living with rare diseases (as well as their families)...

27 Feb 2021 - Poznan

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Dzień Chorób Rzadkich: Terapie Dostępne i Poszukiwanie Nowych image
Dzień Chorób Rzadkich: Terapie Dostępne i Poszukiwanie Nowych

Już po raz czwarty Instytut Biochemii i Biofizyki PAN organizuje sympozjum w Międzynarodowym Dniu Chorób Rzadkich. Tym razem...

26 Feb 2021 - Warszawa

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Launching of the "choroby związane z ATP1A3  -related diseases"  on Facebook image
Launching of the "choroby związane z ATP1A3 -related diseases" on Facebook

20 Feb 2021 - Online

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