NATIONAL ALLIANCE

Pakistan


Rare Disease Day in Pakistan


In Pakistan, Rare Disease Day has been celebrated since 2012. The day has been used to host educational seminars, poster presentations and group discussions on rare diseases.

For Rare Disease Day 2020 there were a number of educational events held around the country. Conference and webinar topics covered include bridging the gap between stakeholders and genetic testing. There were also literacy, education and awareness programs that took place throughout Pakistan.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

 



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FRIENDS IN Pakistan

Events in Pakistan


Panel Discussion on Rare Diseases - Care for Rare image
Panel Discussion on Rare Diseases - Care for Rare

There are more than 7,000 different rare diseases, collectively affecting more than 350 million people around the world....

05 Mar 2021 - Online

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e-portal Launching Ceremony of the Ek-Sath! With patients having Rare Inherited Metabolic Disorders (IMDs) image
e-portal Launching Ceremony of the Ek-Sath! With patients having Rare Inherited Metabolic Disorders (IMDs)

Pak-IMD Net: Patient Support Group Meeting: Living Better with IMD’s in PakistanEngaging patients & families of patients...

01 Mar 2021 - Karachi

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Rare Disease Genetics Research Poster Competetion image
Rare Disease Genetics Research Poster Competetion

Khyber Pakhtunkhwa province has 36 million population. Most of the families prefer to marry within their closer relatives...

22 Feb 2021 - 01 Mar 2021 - Islamia college peshawar

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