Paraguay held its first ever Rare Disease Day celebrations in 2014, with a number of events across the country throughout February. Highlights included a scientific conference aimed at the nursing community, an awareness campaign on rare diseases, and a day of psychological support called, “Love of Life,” for families of people living with a rare disease. It was an emotional opportunity for patients to share stories and experiences and to know they are never alone.
To celebrate Rare Disease Day 2020 Paraguay carried out a large number of activities throughout the month of February. Activities included a conference, information day, hand painting and a music orchestra.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]