NATIONAL ALLIANCE

National Alliance for Rare Diseases of R. Macedonia logo
National Alliance for Rare Diseases of R. Macedonia

North Macedonia


Rare Disease Day in North Macedonia


Rare Disease Day celebrations first began in the Former Yugoslav Republic of Macedonia in 2013. Events have included shopping mall demonstrations engaging the general public, a round table discussion, workshops and a press conference on rare diseases. These have prompted the start of discussions for a National Strategy for Rare Diseases.

In the Former Yugoslav Republic of Macedonia, for Rare Disease Day 2018 they dedicated the first postal stamp in the world to rare diseases to raise public awareness of the challenges that families face. Earlier, in December 2017, members of a diving club once again decorated the underwater Christmas Tree with the Rare Disease Day flag. In addition, people in the FYROM raised awareness by taking part in the #ShowYourRare face painting campaign at schools and through extra educational lectures on rare diseases for medical students.

Celebrations of Rare Disease Day 2020 in North Macedonia saw hand painting, a fun family event, Round Table discussion on newborn screening and a ‘Learning about Rare Diseases’ campaign shared through videos, audio and web presentations.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].



NATIONAL ALLIANCE

National Alliance for Rare Diseases of R. Macedonia logo
National Alliance for Rare Diseases of R. Macedonia

FRIENDS IN North Macedonia

Events in North Macedonia


RD 2021 with the First Lady of North Macedonia image
RD 2021 with the First Lady of North Macedonia

We helped in organization of a meeting with experts in rare disease (doctors, Ministry of Health, researchers, and psychologist)Around...

27 Feb 2021 - Skopje

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New postal stamp for RD 2021 image
New postal stamp for RD 2021

For RDD we planned an event for the 3rd postal stamp for rare diseases.  The first was for children with rare diseases, the...

26 Feb 2021 - Bitola

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RD 2021 at our government image
RD 2021 at our government

We had the opportunuty to gather around 15 rare disease organization at the government of North Macedonia to have a talk...

26 Feb 2021 - Bitola

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"Recognize The Rare-Accept it" image
"Recognize The Rare-Accept it"

This year, an online event in honor of the rare is dedicated to highlighting the importance of networking for medical professionals...

22 Feb 2021 - 28 Feb 2021 - Prilep

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28 days Ohrid will shine in the colors of rare diseases! image
28 days Ohrid will shine in the colors of rare diseases!

On February 1, we started with the national campaign "LEARNING ABOUT RARE DISEASES".Loleska Gordana and "Life with Challenges"...

01 Feb 2021 - 28 Feb 2021 - Ohrid

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