NATIONAL ALLIANCE

Latvian Alliance for Rare Diseases logo
Latvian Alliance for Rare Diseases

Latvia


Rare Disease Day in Latvia


Latvia has been involved in Rare Disease Day since 2010. Most notably, patient groups have held discussions in the EU Conference Hall in Riga to discuss Latvian policy for rare diseases. Other events have included photo exhibitions to raise awareness about the struggles rare disease patients face. In 2016, Latvian Alliance for Rare Diseases wrote an open letter to mass media and general public of Latvia about the crucial and problematic situation in the field of the rare diseases in Latvia.

For Rare Disease Day 2020 Latvia held a number of conferences on the topics of improving lives for those with rare diseases and assessing the needs of patients. 

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].



NATIONAL ALLIANCE

Latvian Alliance for Rare Diseases logo
Latvian Alliance for Rare Diseases

FRIENDS IN Latvia

Events in Latvia


Reto slimību ārstēšanas progress un tuvākie uzlabojumi image
Reto slimību ārstēšanas progress un tuvākie uzlabojumi

2/26/2021 From 12:00 to 13:30 there will be an expert discussion via zoom “Progress of Rare Diseases Treatment and Upcoming...

26 Feb 2021 - Online

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Support for people with rare diseases image
Support for people with rare diseases

Actual discussion: Santa Survila, Ivars Balodis interviewing Baiba Ziemele, head of Latvian Alliance of Rare Diseases. Available...

24 Feb 2021 - Online

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Dreams unite image
Dreams unite

Social media campaign with video about people with rare diseases: we live with same dreams, needs, emotions as everyone else....

22 Feb 2021 - 28 Feb 2021

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