NATIONAL ALLIANCE

Iceland


Rare Disease Day in Iceland


In 2013, Iceland first participated in Rare Disease Day. Since then, there have been educational school visits, appeals to the Icelandic Parliament for greater rare disease support, and donations of equipment to hospitals across the country. In 2015, a 5K run in Reykjavik raised awareness about rare diseases.

On Rare Disease Day 2020, a conference was held for the community covering various topics including talks from a geneticist and a parent of a rare disease patient.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].



NATIONAL ALLIANCE

FRIENDS IN Iceland

Events in Iceland


Perlan light up for rare disease image
Perlan light up for rare disease

Rare disease day in IcelandTo honor rare disease patients all over the world Perlan Museum together with Gódvild will light...

26 Feb 2021 - 28 Feb 2021 - Reykjavik

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Einstök born og fullorðnir / Unique children and adults in Iceland image
Einstök born og fullorðnir / Unique children and adults in Iceland

We are showing a new documentary about Rare in Iceland and  how the system is working ore not working in the Country. It...

24 Feb 2021 - 28 Feb 2021

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