In 2013, Iceland first participated in Rare Disease Day. Since then, there have been educational school visits, appeals to the Icelandic Parliament for greater rare disease support, and donations of equipment to hospitals across the country. In 2015, a 5K run in Reykjavik raised awareness about rare diseases.
On Rare Disease Day 2020, a conference was held for the community covering various topics including talks from a geneticist and a parent of a rare disease patient.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].
National Alliances
Events
Perlan light up for rare disease
Rare disease day in Iceland To honor rare disease patients all over the world Perlan Museum together with Gódvild will… Continue reading Perlan light up for rare disease
Einstök born og fullorðnir / Unique children and adults in Iceland
We are showing a new documentary about Rare in Iceland and  how the system is working ore not working in the… Continue reading Einstök born og fullorðnir / Unique children and adults in Iceland