NATIONAL ALLIANCES

ORGANIZATION FOR RARE DISEASES INDIA logo
ORGANIZATION FOR RARE DISEASES INDIA
Indian Organisation for Rare Diseases logo
Indian Organisation for Rare Diseases

India


Rare Disease Day in India


In India, patient organisations first became involved in Rare Disease Day in 2010. Since then, they've focused on raising awareness and compassion for people living with a rare disease all across India through poster campaigns, school visits, competitions, a film festival, counselling sessions, and more. In 2012, the day attracted mass media attention when Indian star singer Shaan performed at an event.

India marked the occasion of Rare Disease Day 2020 with events across the country including India’s annual ‘Race for 7’ event. More than 7000 participants ran a 7km race to represent the more than 7000 rare diseases documented so far. The Indian Organisation for Rare Diseases also hosted a meeting bringing together all stakeholders, creating a platform to brainstorm and analyse the latest rare disease policy released by the Indian health ministry. 

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

 



NATIONAL ALLIANCES

ORGANIZATION FOR RARE DISEASES INDIA logo
ORGANIZATION FOR RARE DISEASES INDIA
Indian Organisation for Rare Diseases logo
Indian Organisation for Rare Diseases

FRIENDS IN India

Events in India


Race for 7 image
Race for 7

Presenting a unique run/walk/bicycle ride for 7000 meters at 7:00AM on 28 February 2021Your Venue, Your Choice! Run on your...

28 Feb 2021 - Your venue, your choice!

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The untold and unheard story of the Rare Disease Community image
The untold and unheard story of the Rare Disease Community

If you still haven't heard of Rare Diseases, this is your chance to get to know better. The untold and unheard story of the...

21 Feb 2021

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