NATIONAL ALLIANCE

ACHSE e. V. Allianz Chronischer Seltener Erkrankungen logo
ACHSE e. V. Allianz Chronischer Seltener Erkrankungen

Germany


Rare Disease Day in Germany


In Germany, Rare Disease Day was first celebrated in 2009. The day has garnered support from Mr. Hermann Gröhe, former minister of health; Ms. Johanna Wanka, minister of research; and the former German First Lady Eva Luise Köhler. An annual award, the Eva Luise Köhler Research Award, recognises researchers and health care professionals for their brilliant work for patients with a rare disease. In previous years the day has been marked across Germany by a dance evening, workshops, symposiums and a nationwide photo competition.

Rare Disease Day 2020 again saw a wide variety of events across Germany, from Hannover to Ulm and Heidelberg. Lectures, panel discussions and workshops were held on a wide range of topics. Regional and local forums were held to exchange information and experiences on rare diseases. 

You can also get involved! Do you know of any events not listed here? Email us at [email protected]

 



NATIONAL ALLIANCE

ACHSE e. V. Allianz Chronischer Seltener Erkrankungen logo
ACHSE e. V. Allianz Chronischer Seltener Erkrankungen

FRIENDS IN Germany

Events in Germany


RARE DISEASES, PAST, PRESENT AND FUTURE. Our videos are now out! image
RARE DISEASES, PAST, PRESENT AND FUTURE. Our videos are now out!

Each bone tells a story. Each story is a bridge between past, present and future.Watch these short videos to: 1. Know how...

28 Feb 2021 - Online

READ MORE...


10. Jahrestag unseres Vereins Hi-e.V. zum Tag der Seltenen Erkrankung image
10. Jahrestag unseres Vereins Hi-e.V. zum Tag der Seltenen Erkrankung

10 Jahre Kongenitaler Hyperinsulinismus e.V.Zum Tag der Seltenen Erkrankung begehen wir den 10. Jahrestag unserer Vereinsgründung.Mit...

28 Feb 2021 - Berlin

READ MORE...


Gründung Zentrum für Interstitielle und Seltene Lungenerkrankungen (ZISLE) image
Gründung Zentrum für Interstitielle und Seltene Lungenerkrankungen (ZISLE)

New Center for Research and Treatment of Pulmonary Rare Diseases. Cooperation between University Hospital of Ludwig-Maximilians-University...

28 Feb 2021 - München, gauting

READ MORE...


Rare Disease Day ZSE Ulm image
Rare Disease Day ZSE Ulm

Dear colleagues, ladies and gentlemen, The Center for Rare Diseases (ZSE) of the Ulm University Hospital would like to cordially...

27 Feb 2021 - Online konferenz

READ MORE...


Virtueller Tag der Seltenen Erkrankungen Ulm image
Virtueller Tag der Seltenen Erkrankungen Ulm

Sehr geehrte Damen und Herren, sehr geehrte Selbsthilfeaktive,                sehr geehrte Interessierte,   gerne möchte...

27 Feb 2021 - Ulm

READ MORE...


Tag der Seltenen Erkrankungen in Mainz image
Tag der Seltenen Erkrankungen in Mainz

Tag der Seltenen Erkrankungen in Mainz

26 Feb 2021 - Online

READ MORE...


Patientenforum zum Weltenzephalitistag und TDSE vom Netzwerk GENERATE image
Patientenforum zum Weltenzephalitistag und TDSE vom Netzwerk GENERATE

Liebe Patientinnen und Patienten, liebe Angehörige und Interessierte,anlässlich des Welt ­Enzephalitis ­Tages am 22. Februar...

22 Feb 2021

READ MORE...


Living with PNH image
Living with PNH

Living with PNHThe German filmmaker Julia Stromberg captured the life of a patient with the rare blood disorder PNH as part...

11 Feb 2021 - 06 Mar 2021

READ MORE...


NEWS VIEW ALL