NATIONAL ALLIANCE

Chinese Organization for Rare Disorders logo
Chinese Organization for Rare Disorders

China


Rare Disease Day in China


China first celebrated Rare Disease Day in 2009 and has a reached a wide audience ever since: a national publicity campaign impacted over 1 million people, summits have gathered over 200 specialists on rare diseases, and advocacy activities have taken place across the country. A particular highlight was the 2016 Chinese Rare Disease Day video called ‘Grateful to have you’.

In 2020 Rare Disease Day saw the “300 Million Thanks” event across China. The message of love is strong and never ‘rare’ was shared nationally through videos, articles, poems and social media posts. The event paid tribute to all those working in the health sector and members of the rare disease community. 

You can also get involved! Do you know of any events not listed here? Email us at [email protected].



NATIONAL ALLIANCE

Chinese Organization for Rare Disorders logo
Chinese Organization for Rare Disorders

FRIENDS IN China

Events in China


Charity sales in Beijing, Hunan and Hangzhou image
Charity sales in Beijing, Hunan and Hangzhou

The Chinese Organization for Rare Diseases (CORD) plans three simultaneous charity sales in Beijing, Hunan and Hangzhou....

28 Feb 2021

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Rare Disease Innovation Competition image
Rare Disease Innovation Competition

The Illness Challenge Foundation (ICF) plans to continue raising public awareness on rare diseases through public events...

28 Feb 2021

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Launch of China's very first official white paper on rare diseases image
Launch of China's very first official white paper on rare diseases

China's very first official white paper on rare diseases: "Rare Diseases Diagnosis, Treatment and Security" will be published...

28 Feb 2021

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Prevention is better than cure- free consultation of Renji hospital image
Prevention is better than cure- free consultation of Renji hospital

This event took place on Feb 28 and lead by Pro. Sun Yun, director of the Department of Reproductive Medicine of Renji Hospital.  The...

28 Feb 2021 - Shanghai

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Lesch Nyhan Disease International Virtual Meeting image
Lesch Nyhan Disease International Virtual Meeting

For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host...

27 Feb 2021 - 28 Feb 2021 - Boston

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Illness Challenge Foundations activities on Rare Disease Day image
Illness Challenge Foundations activities on Rare Disease Day

  Three reports with three different focuses of rare disease in China will be released on RDD 2021 by the Illness Challenge...

27 Feb 2021 - 28 Feb 2021

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