Rare Disease Day 2019 included a conference with medical professionals on the impacts of rare diseases as well as an opportunity for patients and their families to learn more about rare diseases.
Due to the covid 19 pandemic we are organizing two virtual conferences from February 27 to 28, 2021 from 8:30 am to 12.00 On...
27 Feb 2021 - 28 Feb 2021 - Abidjan
READ MORE...
The rare disease community and its supporters come together to share the message: Rare is many. Rare...
The official Rare Disease Day 2021 video launches today and is already available in 36 languages, ki...
For Charlotte from the UK, who has a rare genetic disorder called Osteogenesis imperfecta, sport has...
6 continents, 6 portraits, 6 heroes, 6 lives. Rare Disease Day shines a light on the global and dive...
If you have a rare disease, the search for a diagnosis can often feel like the longest detective inv...
We are excited to announce our Rare Disease Day webinar series, which started on Wednesday 21st Octo...
For some, the day we learned of our rare disease diagnosis is a happy day. Odd, isn’t it?Imagine hav...
Art events are powerful tools to raise awareness for people living with a rare disease. This year Ra...
A real highlight from Rare Disease Day this year was seeing the spectacular sight of buildings and m...
Saturday 29 February was the 13th edition of Rare Disease Day. The campaign continues to grow each y...