NATIONAL ALLIANCE

Canadian Organization for Rare Disorders logo
Canadian Organization for Rare Disorders

Canada


Rare Disease Day in Canada


Patient organisations in Canada have engaged in Rare Disease Day since its first year in 2008, arranging gala dinners and exchanges between researchers and patients, as well as regional events across Canada. To raise awareness in Toronto in 2017, the city’s 3D sign was lit up in the colours of Rare Disease Day—blue, green, pink and purple—for the whole of 28 February!

Rare Disease Day 2020 saw a wide range of events bringing together all members of the community. There were many innovative events from lectures and networking dinners to interactive exhibitions and family fun days. CORD (Canadian Organization for Rare Diseases) hosted a breakfast reception for all members of the rare disease community to meet with Members of the Provincial Parliament and other supporters. In addition they held their annual conference and awards gala celebration. 

You can also get involved! Do you know of any events not listed here? Email us at [email protected].
 

 



NATIONAL ALLIANCE

Canadian Organization for Rare Disorders logo
Canadian Organization for Rare Disorders

FRIENDS IN Canada

Events in Canada


Rare Disease Day Conference:  From Draft to Action Plan image
Rare Disease Day Conference: From Draft to Action Plan

Date: March 9 – 10, 2021 Time: 11am – 2pm EST Registration: https://bit.ly/39szgDs  

09 Mar 2021 - 10 Mar 2021

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Rare Disease Day 2021 image
Rare Disease Day 2021

Join the McGill medicine rare disease interest group (RareDIG) on March 6th at 6PM EST for their third edition of rare disease...

06 Mar 2021 - Zoom

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Virtual Walk for MCADD/Rare Disease Day image
Virtual Walk for MCADD/Rare Disease Day

February 28, 2021 is Rare Disease Day.My son, Archie, was diagnosed at birth via the newborn screening test with a rare genetic...

28 Feb 2021 - Parrsboro

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Canada's Rare Disease Day Illuminations image
Canada's Rare Disease Day Illuminations

The following locations/landmarks in Canada will be illuminated to mark 2021 Rare Disease Day:- CN Tower in Toronto, Canada-...

28 Feb 2021

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LUMIÈRE SUR LES ZÈBRES image
LUMIÈRE SUR LES ZÈBRES

En février, les projecteurs se braquent sur la résilience des personnes vivant avec une maladie rare!Voilà, nous lançons...

28 Feb 2021

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Being mind-full. Wellness for people living with a Rare Disease image
Being mind-full. Wellness for people living with a Rare Disease

Being mind-full. Wellness for people living with a Rare DiseaseWe welcome everyone to join us online to iscuss mental health...

28 Feb 2021 - Calgary

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Rare Disease Day at SickKids image
Rare Disease Day at SickKids

The last day of February is recognized worldwide as Rare Disease Day.  We at SickKids, are proud to join the many who are...

26 Feb 2021

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Journée des maladies rares-Édition 2021-Saguenay Lac St-Jean image
Journée des maladies rares-Édition 2021-Saguenay Lac St-Jean

Cette journée dédiée aux maladies rares permet de sensibiliser la population sur ces maladies et leurs impacts sur la vie...

25 Feb 2021 - Ville de saguenay

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