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Rare Voices Australia Ltd.

Australia


Rare Disease Day in Australia


Australia first participated in Rare Disease Day in 2009 and have since hosted many exciting events to raise awareness among the general public. These have taken place all over the country from Perth to Canberra and Sydney. Among them include an Indian dancing event, an online silent art auction, fun runs, public seminars, bake sales and a high tea event.

Rare Disease Day 2020 in Australia saw the launch of a National Strategic Action plan for Rare Diseases, a milestone event for Australia’s Minister for Health. Across the country a vast number of events took place for all members of the rare disease community. 

Multiple landmarks and buildings were lit up in rare disease day colours to mark the occasion. These include: The Story Bridge, The Victoria Bridge, Adelaide Oval, Perth’s Parliament House, Perth’s Yahan Square Digital Tower, Perth’s Council House, Tasmania’s Town Hall, Canberra’s Telstra Tower, Brisbane’s City Hall and Sydney’s Town Hall.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]



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Rare Voices Australia Ltd.

FRIENDS IN Australia

Events in Australia


Western Australia's Rare Disease Day Landmark Illuminations image
Western Australia's Rare Disease Day Landmark Illuminations

The following locations/landmarks in Perth will be illuminated to mark 2021 Rare Disease Day:- Optus Stadium  - Bell Tower...

28 Feb 2021 - Perth

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Victoria’s Rare Disease Day Landmark Illuminations image
Victoria’s Rare Disease Day Landmark Illuminations

The following locations/landmarks in Victoria will be illuminated to mark 2021 Rare Disease Day:- AAMI Park Melbourne - Wodonga...

28 Feb 2021 - Victoria

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Queensland's Rare Disease Day Landmark Illuminations image
Queensland's Rare Disease Day Landmark Illuminations

The following locations/landmarks in Queensland will be illuminated to mark 2021 Rare Disease Day:- Mackay Fountain- Story...

28 Feb 2021 - Queensland

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New South Wales' Rare Disease Day Landmark Illuminations image
New South Wales' Rare Disease Day Landmark Illuminations

The following landmark in New South Wales will be illuminated to mark 2021 Rare Disease Day:- Newcastle Clock Tower Illuminations...

28 Feb 2021 - New south wales

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South Australia's Rare Disease Day Landmark Illuminations image
South Australia's Rare Disease Day Landmark Illuminations

The following location in South Australia will be illuminated to mark 2021 Rare Disease Day:- Adelaide OvalIllumination organised...

28 Feb 2021 - South australia

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ACT's Rare Disease Day Landmark Illuminations image
ACT's Rare Disease Day Landmark Illuminations

The following landmark in the ACT will be illuminated to mark 2021 Rare Disease Day:- Telstra TowerIllumination organised...

28 Feb 2021 - Act

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Tasmania's Rare Disease Day Landmark Illuminations image
Tasmania's Rare Disease Day Landmark Illuminations

The following locations in Tasmania will be illuminated to mark 2021 Rare Disease Day:- Paranaple Convention Centre- Launceston...

28 Feb 2021 - Tasmania

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Werribee Mansion Illumination image
Werribee Mansion Illumination

For the first time, the iconic Werribee Mansion will be illuminated in the colours of Rare Disease Day from 7.30pm on Sunday...

28 Feb 2021 - Werribee, melbourne

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Phelan-McDermid Syndrome Foundation Australia Global High Tea image
Phelan-McDermid Syndrome Foundation Australia Global High Tea

PMSF Australia is hosting its 8th High Tea event. This year we have decided to go GLOBAL. Join from any part of the world. The...

28 Feb 2021 - Sydney

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Rare Disease Day Fun Run & Walk image
Rare Disease Day Fun Run & Walk

Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, on the last...

28 Feb 2021 - Cairns

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Webinar: Rare is beautiful, let's break the stigma! image
Webinar: Rare is beautiful, let's break the stigma!

Australian Sickle Cell Advocacy Inc will be hosting a panel of discussion with 5 people living with rare diseases in Australia. This...

28 Feb 2021 - Melbourne australia

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Rare is Beautiful - Let's Break The Stigma image
Rare is Beautiful - Let's Break The Stigma

Over 300 million people are living with a rare disease worldwide. Rare diseases are currently affecting 3.5% – 5.9% of the...

28 Feb 2021 - Melbourne, australia

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The Genetic Support Network of Victoria Rare Disease Day Conversations "Who's on your Team?" image
The Genetic Support Network of Victoria Rare Disease Day Conversations "Who's on your Team?"

This year the Genetic Support Network of Victoria (GSNV),  Australia will hold a virtual event to raise awareness amongst...

26 Feb 2021 - Victoria, australia

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The Genetic Support Network of Victoria Rare Disease Day 2021 image
The Genetic Support Network of Victoria Rare Disease Day 2021

Join the GSNV in celebration of Rare Disease Day with a virtual journey showing the power of alliances that build supportive...

26 Feb 2021 - Online

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FoxG1 Rare Disease Day: Birthday image
FoxG1 Rare Disease Day: Birthday

#February is Rare disease month,Kush was the first child in Sydney and the first child in India Diagnosed with FoxG1 He will...

21 Feb 2021 - Sydney, melbourne, brisbane, adelaide, perth canberra

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SCN2A Awareness image
SCN2A Awareness

We will be sharing interviews with parents abotu the impact of have SCN2A and why it needs further funding and support.

21 Feb 2021 - 28 Feb 2021 - National

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The Challenge image
The Challenge

Virtual fundraising challenge in sports routine or fitness routine to fundraise for Ataxia, ataxia research and climate change....

15 Feb 2021 - 01 Sep 2021 - Melbourne to sydney

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Rare Kids Art Competition image
Rare Kids Art Competition

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Rare Kids Art Competition.Ask your kids...

22 Jan 2021 - 22 Feb 2021

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Rare Disease Day Photography Competition image
Rare Disease Day Photography Competition

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Photography Competition.Get your cameras...

22 Jan 2021 - 28 Feb 2021

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