Rare Disease Day in Peru is organised by FederaciĆ²n Peruana de Enfermedades Raras (FEPER) in conjunction with the Ministry of Health, members of the Peruvian Congress and other institutions involved in improving the management of these diseases. In previous yearsĀ representatives for different associations of rare diseases visited 12 hospitals across Peru talking to doctors, directors and nurses on the subject! Events have also included talks about rare disease followed by artistic and musical entertainment, as well as testimonials from people living with a rare disease.
To mark Rare Disease Day 2020 Peru invited the community to participate in the 1st International Congress of Rare Diseases Peru.
Do you know of any events not listed here? Or would you like to get involved? Email us atĀ [email protected]