Today is Rare Disease Day 2018! With events happening in over 90 countries and regions across the world, together we can raise awareness to help further… Continue reading Today is Rare Disease Day!

Mirina stars in the Rare Disease Day 2018 official video and is living with Ehlers-Danlos syndrome. She was diagnosed at the age of 4 and… Continue reading Meet Mirina

EURORDIS is very pleased to announce that Sean Hepburn Ferrer, the eldest son of the late actress and humanitarian, Audrey Hepburn, is Rare Disease Day… Continue reading Rare Disease Day 2018 Ambassador

The official Rare Disease Day 2018 video launches today and is already available in 24 languages, kicking off the international patient-led movement that puts rare… Continue reading Out Now! Rare Disease Day 2018 video is here!

Father and son Antoine and Alexandre both appear in the official Rare Disease Day 2018 video. Alexandre lives with fibrodysplasia ossificans progressiva, a very rare… Continue reading Meet father, Antoine, and son, Alexandre

Annie developed Leber hereditary optic neuropathy (LHON) at an adult age, when she was 44 years old. LHON affects fewer than 1 in 15 000… Continue reading Meet Annie

Enzo is the youngest star of this year’s Rare Disease Day video and has just turned 5. He lives with Congenital Myasthenic syndrome, a neuromuscular… Continue reading Meet Enzo

With under 50 days to go, Rare Disease Day preparations are fully underway and we are one step closer with the release of the official… Continue reading Rare Disease Day poster out now!

Yara is a currently a researcher specialising in rare diseases and one of the stars for the Rare Disease Day 2018 video. She first witnessed… Continue reading Meet Yara