On 28 February 2022, the rare disease community is coming together for Rare Disease Day to spread hope and solidarity across the world with a… Continue reading Join the Global Chain of Lights!

Today is the launch of the official Rare Disease Day 2022 video in over 40 languages! This video kicks off the international patient-led campaign and… Continue reading Official 2022 Global Video Launch

Meet Vasco, Jelena, Wafic, Nada, Tshepiso, and Taka: our Rare Disease Day 2022 superheroes! Although they live with different diseases, come from different countries, and… Continue reading MEET OUR 2022 SUPERHEROES

We are thrilled to announce the return of the Rare Disease Day capacity-building webinar series, following last year’s huge success. In this year’s webinar series,… Continue reading Rare Disease Day Webinar Series Returns for 2022

A global grassroots campaign led by people living with a rare disease and their families has successfully secured the adoption of the first-ever UN Resolution… Continue reading Resolution for People Living with a Rare Disease adopted by the United Nations

CONNECTING THE WORLDWIDE RARE DISEASE COMMUNITY WITH 100 DAYS TO RARE DISEASE DAY 20 November 2021, Paris Today marks the launch of the global awareness… Continue reading Press Release: 100 Days to Rare Disease Day 2022

The rare disease community and its supporters come together to share the message: Rare is many. Rare is strong. Rare is proud! Today, 28 February,… Continue reading Many, Strong, Proud: Connecting Rare Disease Day Across Continents

The official Rare Disease Day 2021 video launches today and is already available in 36 languages, kicking off the international patient-led movement that puts rare diseases… Continue reading Out Now! Rare Disease Day 2021 video is here!

For Charlotte from the UK, who has a rare genetic disorder called Osteogenesis imperfecta, sport has been a really important part of her coping mechanism.… Continue reading How sport can be a valuable therapy for rare diseases