Registration is now open! Rare Disease Day 2015    Rare but Real: Talking Rare Diseases EURORDIS Policy Event 24 February 2015, 10.30 – 13.00 Residence Palace, 155,… Continue reading EURORDIS Rare Disease Day Event: Registration open!

The Official Rare Disease Day 2015 Poster is Out: Download and Share it! The official Rare Disease Day 2015 Poster is now available for you to download and print… Continue reading Discover the Official Rare Disease Day 2015 Poster!

Watch our informative interactive webinar on The Spirit of Rare Disease Day in preparation for Rare Disease Day 2015! Are you planning to use Rare Disease Day communication materials at your event? Listen… Continue reading Watch the Interactive Webinar on The Spirit of Rare Disease Day

The website for Rare Disease Day 2015 is officially open for business! With 100 days to go, now is the time to start planning and… Continue reading 100 day countdown to Rare Disease Day 2015!

The Rare Disease Day 2015 theme Living with a Rare Disease pays tribute to the patients, families and caregivers who are impacted by rare diseases.… Continue reading The Rare Disease Day 2015 theme and slogan: Living with a Rare Disease – Day-by-day, hand-in-hand

EURORDIS is delighted to announce the Rare Disease Day 2015 Ambassador: Sean Hepburn Ferrer. Born in Lucerne, Switzerland, Sean Hepburn Ferrer is the eldest son… Continue reading Meet the Rare Disease Day 2015 Ambassador: Sean Hepburn Ferrer