Rare Disease Day Media Information

Rare Disease Day Media Information

Press Releases and Official Communication

Press Articles, Television and Radio

Media around the world are reporting on the build-up to Rare Disease Day 2019, the patient-driven international movement this year focused on the theme of 'Bridging health and social care'. Read about the media coverage of Rare Disease Day 2019. Know about a media story not posted here? Let us know at [email protected]

Rare Disease Day History

Each year Rare Disease Day has seen events take place all over the world. See year-by-year highlights and how Rare Disease Day has grown since its first celebration in 2008: 2019201820172016, 2015, 2014, 2013, 2012, 2011, 2010, 2009, 2008Read more 

Find out more about the official partners of Rare Disease Day.

For media enquiries please contact Eva Bearryman, [email protected].

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