About Rare Disease Day

Find out what Rare Disease Day is about

28 February 2021 will be the fourteenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities. 

Rare Disease DayWhat is Rare Disease Day?

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases.
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Rare DiseaseWhat is a Rare Disease?

A rare disease, also referred to as an orphan disease, is any disorder that affects a small percentage of the population. Although the disease may be rare, patients and families share a common struggle.
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Rare Disease DayOverview of Past Rare Disease Days

See year-by-year highlights and how Rare Disease Day has grown since its first celebration in 2008!
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Rare Disease Day's new webinar series!
Rare Disease Day's new webinar series!
We are excited to announce our Rare Disease Day webinar series, which started on Wednesday 21st October. In these webinars, a range of topics will be covered to help you prepare for February, from bui...
19 Oct 2020
“No one would believe me”: A common feeling for people living with a rare disease
“No one would believe me”: A common feeling for people living with a rare disease
For some, the day we learned of our rare disease diagnosis is a happy day. Odd, isn’t it?Imagine having your closest friends and family thinking that you are overreacting a bit, or that you are search...
05 Oct 2020
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