About Rare Disease Day

Find out what Rare Disease Day is about

28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities. 

Rare Disease DayWhat is Rare Disease Day?

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases.
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Rare DiseaseWhat is a Rare Disease?

A rare disease, also referred to as an orphan disease, is any disorder that affects a small percentage of the population. Although the disease may be rare, patients and families share a common struggle.
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Living with a Rare Disease, Day-by-day, Hand in handTheme for 2018 

In 2018 the theme was Research. Research is key. It brings hope to the millions of people living with a rare disease across the world and their families.
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Rare Disease DayOverview of Past Rare Disease Days

See year-by-year highlights and how Rare Disease Day has grown since its first celebration in 2008!
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Rare disease day 2018 video
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Official Rare Disease Day 2018 video!
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News
Today is Rare Disease Day!
Today is Rare Disease Day!
Today is Rare Disease Day 2018! With events happening in over 90 countries and regions across the world, together we can raise awareness to help further the rare disease cause. 5 new countries are pa...
28 Feb 2018
Meet Mirina
Meet Mirina
Mirina stars in the Rare Disease Day 2018 official video and is living with Ehlers-Danlos syndrome. She was diagnosed at the age of 4 and has been living with the rare connective tissue disease from b...
09 Feb 2018
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