About Rare Disease Day

Find out what Rare Disease Day is about

29 February 2020 will be the thirteenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities. 

Rare Disease DayWhat is Rare Disease Day?

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases.
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Rare DiseaseWhat is a Rare Disease?

A rare disease, also referred to as an orphan disease, is any disorder that affects a small percentage of the population. Although the disease may be rare, patients and families share a common struggle.
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Rare Disease DayOverview of Past Rare Disease Days

See year-by-year highlights and how Rare Disease Day has grown since its first celebration in 2008!
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Meet KP
Meet KP
Kin Ping  is living with retinitis pigmentosa. He was diagnosed as a teen after 10 years of visiting dozens of ophthalmologists. Retinitis pigmentosa symptoms include difficulty seeing at night and th...
17 Jan 2020
New Rare Disease Day Poster 2020 out now!
New Rare Disease Day Poster 2020 out now!
Download the official Rare Disease Day 2020 poster to display at your events, workplace or home and to share the message that Rare is many worldwide, rare is strong every day, rare is proud everywhere...
07 Jan 2020
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