About Rare Disease Day

Find out what Rare Disease Day is about

28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities. 

Rare Disease DayWhat is Rare Disease Day?

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases.
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Rare DiseaseWhat is a Rare Disease?

A rare disease, also referred to as an orphan disease, is any disorder that affects a small percentage of the population. Although the disease may be rare, patients and families share a common struggle.
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Living with a Rare Disease, Day-by-day, Hand in handTheme for 2018 

In 2018 the theme was Research. Research is key. It brings hope to the millions of people living with a rare disease across the world and their families.
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Rare Disease DayOverview of Past Rare Disease Days

See year-by-year highlights and how Rare Disease Day has grown since its first celebration in 2008!
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Official Rare Disease Day 2018 video!
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News
Theme 2019
Theme 2019
Rare Disease Day 2019 theme announced: Bridging health and social care The theme for Rare Disease Day 2019 is 'Bridging health and social care'. For most people living with a rare disease, as well...
11 Oct 2018
Get involved - #ShowYourRare for Rare Disease Day 2019!
Get involved - #ShowYourRare for Rare Disease Day 2019!
Launched in 2018, #ShowYourRare is the interactive social media campaign for Rare Disease Day.Anyone around the world can get involved by painting their face and sharing a selfie on social media using...
14 Sep 2018
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