About Rare Disease Day

Find out how you can Get Involved in Rare Disease Day!

Download the official Rare Disease Day communication materials here!

Find out what Rare Disease Day is about

29 February 2020 will be the thirteenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities.

What is Rare Disease Day?

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases.
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What is a Rare Disease?

A rare disease, also referred to as an orphan disease, is any disorder that affects a small percentage of the population. Although the disease may be rare, patients and families share a common struggle.
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