About Aicra Associazione Craniostenosi ETS
AiCRA was started in 2010 by a group of parents whose children were born with craniosynostosis.
We noticed there were few places for information and support. We decided to do something about it, and AiCRA Onlus was born. Our goal is to create an environment where families can come for support, and to raise awareness on this virtually unheard of condition.
For Rare Disease Day, as each year, we will inform community and friends to raise awareness.