About Lynk Up World
Rare Disease Support by Lynk Up World (LUW) Nonprofit Organization
Lynk Up World (LUW) Nonprofit Organization is committed to building a global community for families affected by rare diseases. There are over 7,000 rare diseases worldwide, impacting millions of people. Therefore, LUW strives to create meaningful connections by empowering families through art, education, sustainability, and support systems.
Our mission is to provide comprehensive rare disease support. We raise awareness, drive research, and deliver emotional and practical resources to families. Every family deserves not only care but also the tools and a supportive community they need to thrive. They face many challenges because of rare diseases, but together we can help them overcome these obstacles.
In addition, you can learn more about how we support families on our Rare Disease Resources page. Here, you will find useful information and tools for those affected by rare diseases.
Our Flagship Initiatives: The Rare Hero Program
One of our flagship initiatives is the Rare Hero Program. This program leverages storytelling, eco-friendly products, and digital innovation to inspire hope in families facing rare diseases. Additionally, the Rare Hero Box provides creative, educational, and emotional support to families.
Moreover, we aim to bridge the gap between rare disease patients, caregivers, and the resources they need to thrive. The Rare Hero Program is one of many ways Lynk Up World (LUW) Nonprofit Organization offers lasting support. You can also learn more about our Beat of Hope initiative, which brings together music and rare disease awareness.
Inspiration from “The Greatest”
At LUW, we are inspired by Kim Gehrig’s short film The Greatest, created for Apple. This film marks an important shift toward authentic disability portrayal in media. It emphasizes the need for inclusivity, awareness, and art. By aligning with such powerful narratives, Lynk Up World (LUW) aims to enhance visibility and understanding of rare diseases.
Watch the inspiring film “The Greatest” by visiting this link to see how it aligns with our mission to raise awareness for families impacted by rare diseases.
How You Can Support Rare Disease Families with Lynk Up World (LUW)
Join us in making a difference! Your donations and support can provide hope and essential resources to families affected by rare diseases. Every contribution counts, no matter how small. Visit our Support Us page to learn how you can contribute to our programs.
Your donations directly fund initiatives like the Rare Hero Program, empowering families through art, sustainability, and innovation. Please visit the Rare Hero Program page to see how your contributions make a lasting impact.
For more information about our tax-exempt status, download our official IRS Determination Letter.
Get in Touch with Lynk Up World (LUW) Nonprofit Organization
If you want to join our mission or learn more about how we support families, please contact us. You can also follow our journey and connect with us on social media:
Together, we can amplify the voice of the rare disease community and create a brighter future for families in need. Visit our Support Us Page to see how you can contribute your time or resources to make a difference.
A child dressed as a superhero on an adult’s shoulders, symbolizing strength, hope, and support for rare disease families through Lynk Up World (LUW) Nonprofit Organization.
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