About A Cure for Sophia and Friends
A Cure for Sophia and Friends paves the way towards a cure for the ultra-rare RARB genetic mutation (MCOPS12). A Cure for Sophia and Friends is the U.S. based non-profit in partnership with Cure MCOPS12, a non-profit based in Austria. Together, we accelerate cutting-edge research and drive relentless efforts to improve the lives of MCOPS12 patients.
This leap year, February 29th isn’t just an extra day on the calendar. It’s Rare Disease Day, a time when we come together to shine a light on conditions like #MCOPS12 – an ultra-rare neurological disease affecting individuals and families worldwide.
That’s why A Cure for Sophia and Friends is calling on YOU to join us in making a difference. How?
Spread Awareness: Share this post and educate others about MCOPS12 and Rare Disease Day.
Show Your Support: Consider donating to help fund our drug repurposing study!
Show Your Colours: On #rarediseaseday, wear something colorful to show solidarity with rare disease patients. Snap a photo, tag us @ACureforSophiaandFriends, and use the hashtag #ShowYourColours to join the movement.
Together, we can make a difference. Let’s paint the world with awareness, support, and hope for a brighter future!
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