About Rarus Health SPA
Rarus Health collects the largest real-world database on rare genetic diseases in Latin America through the care management of families. Our mission is to provide everyday support for families and involve them in patient-focused drug and gene therapy development. This year, we will host an educational webinar for caregivers, patients, and healthcare specialists to open the ‘black box’ of the Research & Development process in the pharmaceutical industry and show practical tools for how they can be active partners in it.