Description
One-day hybrid (in person + online) conference in the form of panel discussion “DOUBLE WAR: Ukraine`s European vector in providing treatment and support for people living with a rare disease in the context of a full-scale war”.
Representatives of EURORDIS-Rare Diseases Europe, the European Parliament, the European Reference Networks (ERNs), doctors from the expert centres on rare diseases from Ukraine and ERNs, patient communities, representatives of the Ukrainian authorities, the Ministry of Health of Ukraine, the National Health Service of Ukraine, the “Medical Procurement of Ukraine”, and many others have been invited to participate in the event.
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