Rare Disease Day 2024 video

Rare Disease Day 2024 shines a light on the global and diverse community of over 300 million people living with a rare disease and their families.

In an unprecedented effort, we invited individuals from around the world to share their stories in their own words and settings. With over 80 submissions from across the globe – spanning from Argentina to Italy, Bahrain to India – we’ve crafted a video that genuinely embodies the diverse experiences of the rare disease community.

Each participant, regardless of their nationality, age, gender, or type of disease – including rare cancers and undiagnosed conditions – had the opportunity to share their story. The challenge of selecting from these powerful submissions was immense, yet the outcome is a video that goes beyond telling stories – it amplifies them.

Available in more than 60 languages and disseminated worldwide by the 72 National Alliance patient organisation partners of Rare Disease Day, this video stands as a testament to our diverse, global community.

Watch it now, and be sure to share the video on your social media using the hashtag #RareDiseaseDay.

We would like to thank all of this year’s rare disease heroes for their participation in the campaign: Rachele, Nate, Logan, Zainab, Sai, Monica, Erika, Imran, Dan, Chapman, Marlene and her son AJ, Lauren, Aisha, Julia, Danielle, Iuliana and her son Victor, Lachy, Rose, Rifhan, Carlos, Ondine, Darren and his daughter Elly, Veronica, Justine, Kristian, Maria, Zyan and her daughter Safia, Sofia, Linda, Aline, Georgina, Owen, Kareem, Laura, Giovi, Cecilia, Jade, Roberta, Carla, Abigail, Evelyn, Maria, Catherine and Concetta and her daughter Sophie.

Check out our other assets: