About Cure ADOA Foundation
The Cure ADOA Foundation was founded in 2018 by and for patients with autosomal dominant optic atrophy (ADOA) and the plus variant.
In 2022 we became a recognized patient organization. We are also a non-profit organization with an official ANBI status and we are affiliated with the Dutch Association of Cooperating Parent and Patient Organizations (VSOP).
In addition to the general board, the foundation also has a medical advisory board that supports us in medical matters.
Our mission is to financially support scientific research in order to promote the treatment and cure of ADOA. To achieve this, we want to increase awareness of ADOA nationally and internationally.
The Cure ADOA Foundation has four main goals.
1. Awareness
2. Patients
3. Interaction
4. Research
For Rare Disease Day we raise awarenss through our socials.