About Defeat Duchenne Canada
Defeat Duchenne Canada is the country’s only national charity dedicated to ending Duchenne muscular dystrophy. Our goal is to provide leadership in research, advocacy and support to ensure our boys and young men can live long and active lives.
To celebrate Rare Disease Day 2024, Defeat Duchenne Canada is launching an innovative self-submission storytelling platform. We invite our community of patients, parents and caregivers to share their personal stories and help forge connections with more families, sending a message of solidarity as we strive for a future free from Duchenne.