About Smith-Lemli-Opitz Foundation
The Smith-Lemli-Opitz Foundation is an international, nonprofit organization made up of families impacted by Smith-Lemli-Opitz syndrome (SLOs), volunteers, and medical professionals committed to improving the quality of life for individuals with SLOs.
Since its beginning in 1990, the Foundation has grown from a small number of parents into a global organization that provides networking and consistent support to SLOs families. Led by board members who have been personally touched by SLOs, the Foundation sponsors biennial scientific and family medical conferences, hosts regular educational webinars, funds scientific research, and strives to raise awareness about the diagnosis and treatment of SLOs.
On Rare Disease Day, we seek to raise awareness of Smith-Lemli-Opitz syndrome as one of the over 7,000 rare diseases and to raise awareness of all rare diseases and the ways in which our lives are impacted.