About ERN BOND European Reference Network on Rare Bone Diseases
ERN BOND is one of the 24 European Reference Networks focusing on rare bone disorders.
The main ambition of ERN BOND is to implement measures that facilitate multidisciplinary, holistic, continuous, patient-centred and participative care provision to people living with rare bone diseases (RBDs), supporting them in the full realisation of their fundamental human rights. In particular, ERN BOND aims to ensure that people living with an RBD are afforded the same standards of care and support as the ones available to other citizens with similar requirements.
ERN BOND members yearly contribute to the Rare Disease Day campaign https://ernbond.eu/rare-disease-day/