About Dazzle4Rare
Dazzle4Rare is a week to raise awareness for people with undiagnosed and rare diseases. The event is unique because it helps communities of all sizes exchange and share information, reaching more people in other communities. We reached our biggest year in 2022 on Twitter with over 9.4 million tweet impressions during the event week with over 30 global co-hosts.
The idea is simple: when you share for another community, that community’s message can reach more people who might be helped by it. And when other communities share your message, you reach more people too!
Dazzle4Rare is an ongoing conversation about working together as a larger community to help more people. It takes a lot of work, but it’s worth it to ensure more people see your community’s message.
Dazzle4Rare also hosts a bi-monthly podcast focused on global rare disease community news, events, stories, and chats with figures in the global rare disease community. The podcast is available on all major podcast platforms.
On Rare Disease Day, we will share campaign materials on our social media