About EDS Lëtzebuerg asbl
Our vision: Inform and educate the general public about Ehlers-Danlos syndrome.
Contribute to the spread of information about screening and methods of treatment for Ehlers-Danlos syndrome.
Information, advice and support for people with Ehlers-Danlos syndrome and help for them and their families.
A little post on fb, hoping many people will participate:
#rarediseaseday2023 is fast approaching, do you want to have a little laugh? Then post a fun fact or photo of your rare disease on social media with the hashtags #showyourrare2023 #Letzebuerg #funfacts
We would be happy if you could participate and share the action. Only together can we raise enough awareness.