About MAP Patient Access
MAP Patient Access is a market access specialist for rare diseases. We are proud to have supported 70% of all the NICE Highly Specialised Technology (HST) evaluations to date and are hoping to run a number of activities around Rare Disease Day.
- We are asking our staff to share their own experiences of rare diseases – be that in how they have supported clients on their projects with rare diseases, or in their personal lives. This will be shared on our social media.
- We are asking our teams to use the Rare Disease Teams banner on 28th February 2023
- Ongoing social media activities to raise awareness and spread the word about Rare Disease Day
 Here is some information about what we’re planning on doing to support Rare Disease Day
- We’re running a webinar on 2nd March 2023: Perfect Storm – how to navigate pricing and reimbursement challenges for rare disease technologies? You can find out more via this link: https://register.gotowebinar.com/register/6029584756455790678 We are just about to start promoting this event but it will feature a representative from Patient Advocacy Group Gene People.
- We are asking our staff to share their own experiences of rare diseases – be that in how they have supported clients on their projects with rare diseases, or in their personal lives. This will be shared on our social media.
- We have created a video outlining some of the challenges rare disease patients face when it comes to market access. You can view this here
- We are asking our teams to use the Rare Disease Teams banner on 28th February 2023
- Ongoing social media activities to raise awareness and spread the word about Rare Disease Day