School toolkit: explaining living with a rare disease to children and teenagers

Do you know a young child or a family who is dealing with acceptance and making friends at school? Are you a pre-school or kindergarten teacher, and a student in your class has a rare disease? Are you a parent or adult who believes in sharing the values of empathy and inclusion with children and teenagers?

Within the Rare Disease Day global platform and together with our national alliance rare disease patient organisation partners, we have put together elements (translated in over 20 languages) which might help you start the conversation with teachers or with young children.

Please download them, adapt them, and translate them! They are tools for you to freely use.

More resources from around the globe!

In addition, we have collected here in one place, several resources which already exist and which have been produced by patient groups around the world in a variety of languages – all of which are targeted at helping explain rare diseases to children.