The story of Kiko
I’m Kiko. I’m 11 years old and live in Slovakia, close to Ruzomberok. I was diagnosed with Duchenne muscular dystrophy practically by accident. My mom remembers: “You couldn’t run, you walked up the stairs slowly, just one at a time, you held on, often you would suddenly fall down up to 6 times a day. We could see how you were fading very quickly. In the first year I still walked to school, but in the second year, when I was about eight years old, I sat in a wheelchair for the first time.”
The wheelchair changed my life. Moving around is not such a heroic feat for me, it doesn’t exhaust me as much and I can concentrate on my friends, school life around me. Thanks to my mom, my godmother Monika, who is my second mom and lives with us, but also my grandparents, my cousin, our whole super family who is not afraid of anything I am really living life to the fullest.
My mom Mirka says: “We’ll go anywhere we can get to with Kiko. We want him to see as much as possible. For example, we still remember our trip to the Tatra Mountains with joy. On the way back from one walk we got soaked to the skin. However, Kristian was thrilled about it! It was a real tourist experience for him. We are also planning a summer camp organized by the Organization of Muscular Dystrophy in the Slovak Republic. However, Kristiánko is still used to being with me or his godmother Monika, so for now he can hardly imagine that I would be doing something completely different than him at the camp. For the moment we are leaving this area open…”
Today I am already studying individually. I have my own study plan, I love English, but I also enjoy history. With maths we are not so much friends.
If everything would at least stay as it is we would all be happy. Read more about me https://sazch.sk/svalova-dystrofia-syna-priviedla-miroslavu-k-pozitivnemu-mysleniu/