The story of Lara
Hi, my daughter Lara was diagnosed with MIDAS Syndrome in 2015. MLS syndrome is genetic condition that affects the eyes and skin. Lara has also been diagnosed with C-ACC and XXX Syndrome. Lara is 6 years old, enjoys being outside and loves playing with her musical lighted toys. Lara has her own unique way of doing things, We call it “Lara’s Way”. Lara has defied all the odds that were and are against her. Lara, since birth has been and is an encouragement to everyone, she encounters. We live in Sharpsburg, NC, USA. Our mission and goals are to bring awareness to rare diseases, special needs and deaf blindness.