About PKU Heroes
Our organization is an association of help for people with Phenylketonuria. It’s first of it’s kind in our country. We are pretty new, but for this Rare Disease Day we organized ‘Illumination of Buildings”, projects for kids in elementary school, media material and on a meeting with the Major of our municipality an agreement for exemption from co-payment for kindergarten for children with rare diseases.
in the next months, we are planning to make a project for Metabolic Screening in our country.