About TESS Research Foundation
TESS Research Foundation is committed to helping children and families affected by SLC13A5 Epilepsy, a severe genetic epilepsy. We are determined to diagnose, treat, and ultimately cure SLC13A5 Epilepsy by driving cutting-edge research and connecting families, doctors, and researchers.
We will be posting on social media on February 28 to spread awareness about rare diseases in general and SLC13A5 Epilepsy specifically. We have also designated May 13 as SLC13A5 Epilepsy Awareness Day and are planning activities for this day.