Event Summary

We hit a new mark: participation in 84 countries with 410 events worldwide! Patient organisations from 9 new countries participated for the first time this year: Cuba, Ecuador, Egypt, Guinea, Kenya, Jordan, Kazakhstan, Oman, and Paraguay.

• Over 100 people attended the EURORDIS Policy event in Brussels. Watch the videos of the event here
• 244 Friends of Rare Disease Day

Social Media Highlight

• Over 138,000 unique visits to www.rarediseaseday.org in the last 4 months (compared with 79,000 last year for the same period), and 50,000 views on Rare Disease Day!
• The official Rare Disease Day video was translated into 21 languages and received over 67,000 views
• Our Facebook community grew significantly this year jumping to 40,000 likes
• The ‘Tell your Story‘ feature allowing visitors to upload their stories, photos and videos has been a great success – over 140 stories being written
• Thousands of people responded to our call to ‘Raise and Join Hands’ campaign – Look at the photos here